Metastatic Breast Cancer Network
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HOUSE OF REPRESENTATIVES SPEAKS ON MBC - CLICK HERE
HEADLINES

2010 ANNUAL ASCO MEETING - MBC ABSTRACTS

Advances Elusive in the Drive to Cure Cancer

Errors in Her-2 and Hormone Receptor Tests
What is MBCN?

The Metastatic Breast Cancer Network (MBCN) is a national, independent, patient-led, non-profit, advocacy group dedicated to the unique concerns of the 155,000 women and men living with metastatic breast cancer, and the extimated 30% of those with primary breast cancer who face the possibility of recurrence and a stage 4 diagnosis.


MBCN promotes the view that it is up to all of us, metastatic and non-metastatic alike, to join together to fight for the development of treatments to extend life... as the search for a cure continues.  

What is MBCN's mission?
Our mission is awareness and education.

AWARENESS: MBCN raises awareness of metastatic breast cancer by putting a public face on the metastatic experience. We give those living with stage IV disease a  greater voice and visibility in the breast cancer community, the medical community, and with the public-at-large.

EDUCATION: MBCN strives to help those living with metastatic breast cancer be their own best advocate through providing education and information on better treatments and coping with the disease. 

We, the metastatic population, need to be acknowledged, accepted and heard. We need to bring attention to our cause so that research will focus on the process of metastasis in order to develop more and better treatments to extend life and make stage 4 breast cancer a truly chronic disease. We need to be included in the discussion!



What is on the 2010 horizon?
We are in the process of updating our website to make it more user friendly and provide more information for our membership. Several members across the country are volunteering their time and skills in helping to gather the appropriate information. 

Our NATIONAL CONFERENCE will be at IUPUI on Saturday October 16. We are delighted to be hosted by both Drs. George Sledge and Kathy Miller.  Further info and registration will be available on our website in August. We look forward to seeing you in Indianapolis!  
 
We started distribution of our Metastatic Kits at the May ONS conference in San Diego. We are also taking orders from our website. The kits include: the brochure Diagnosis Metastatic Breast Cancer (written and produced by MBCN in consultation with Dr. Clifford Hudis at Memorial Sloan-Kettering), Questions To Ask Your Doctor (questions submitted by members living in both urban and rural areas), Pain Management Q&A (questions submitted by numerous members & answers from Dr. Steve Passik at Memorial Sloan-Kettering), Clinical Trials Q&A (questions submitted by membership & answers from Dr. Hal Burstein at Dana-Farber), Glossary (compiled by MBCN), Select Resources (info gathered and checked by several members), Standard Treatments (info from long-time advocate and author Musa Mayer at www.advancedbc.org ), Getting What You Need (seven tips from Dr. Larry Norton at Memorial Sloan-Kettering), generic & trade names of common drugs (compiled by MBCN).  We are so very appreciative to everyone who contributed toward the production of this kit!

We have updated our information on all mbc support groups across the country - with help from several members who offered their time to make phone calls to check for accuracy of information.

We continue to provide mbc t-shirts to all walkers.

We continue to offer updated metastatic news and relevant information on metastatic events across the country - with help from members who offer their time and expertise to hunt out information and post it on the website. 
 
MBCN continues to be an all volunteer organization. We continue to offer everything we do FREE of charge... and we continue to appreciate our volunteers and the donations that make this all possible.







 

 
MBCN: a national independent advocacy group of and for people with metastatic breast cancer